Researchers in New Zealand have been learning about Advance Care Planning.  This is the type of planning people do when they are thinking about the end of their life.  They talked to people with learning disability who were unwell and dying.


The Easy Read report can be seen here.


Nic McKenzie, a researcher, said that people had clear, strong views.  She said some things were important to all of the people who took part in the research:

  • They wanted plans to be about their lives, not just their deaths
  • They wanted to make their own decisions
  • Planning had to be done at a speed that was right for them
  • They wanted families and staff to be open and honest with them about what was happening.